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freedomfromme (November 30, 1999 at 12:00 am)
Thank you for this touching video. Please do take a look at the specialised chronic fatigue syndrome videos on our channel
luminescentfeeling (November 30, 1999 at 12:00 am)
Fantastic video, very touching.10/10
Weallmustlivetodie (November 30, 1999 at 12:00 am)
Thank you, this video shows the truth of what i and many other people have to go through every day. I do not have it that bad but some times my headaches used to have me screaming in pain, now i have to scream inside, to stop my familys scorn. They don't understand.
Weallmustlivetodie (November 30, 1999 at 12:00 am)
Thank you, this video shows the truth of what i and many other people have to go through every day. I do not have it that bad but some times my headaches used to have me screaming in pain, now i have to scream inside, to stop my familys scorn. They don't understand.
cielle1 (November 30, 1999 at 12:00 am)
Two years later I feel it is still a huge struggle. I live alone with my 14 years old son, and I use all of my energy to take care of him. I would like my son to have an as normal familysituation as his friends. I kind of search for a balance in life...where I can contribute at my level, or a bit above that step - and at the same time be a successfull mother:))
pigeonsintheattic (November 30, 1999 at 12:00 am)
Anyone who has been diagnosed with CFS should suspect Lyme Disease, and see a lyme disease specialist, get a western blot test or better, and/or be clinically monitored. A lot of your pain, (maybe not all,) can subside with long-term antibiotic treatment.
imonlysayin (November 30, 1999 at 12:00 am)
It really pisses me off when people say "yeh, i think i have that".....try having it for as long as i have, and then say it mate. Doctors always want to do tests on me and come back saying the same thing....I am currently trying a product called Kakadu juice...I shall keep you informed on how it has or hasn't helped me...I can only say it is like living with a schizophrenic body....you never know how your body will feel every day.
imonlysayin (November 30, 1999 at 12:00 am)
I cried to see this video...I am an Aussie and have had CFS for the past 17 years....I lost my career as a telecommunications technicians and my modelling career to this dreaded bloody thing. I did choose to have children though, and it is bloody tough, i can tell you especially as i have a one year old at the moment..My partner still doesn't have a true understanding of it after 15 years together..Now we live apart because i am so fed up of not being heard.
MasterSun2200 (November 30, 1999 at 12:00 am)
Yeah that sort of thing always pissed me off too...
yelloworangered (November 30, 1999 at 12:00 am)
I have begun telling people that I have "Chronic Neuroendocrinimmunologic Disorder Syndrome." They never sayl, "I think I have that, too!" or "I think I have a touch of that" as they did when I called my illness "Chronic Fatigue Syndrome." |
